It’s been over three months now…and still no remission. Nor diagnosis. I’m functioning and able to get the kids to school. But I’m certainly not at my baseline and my symptoms keep ping-ponging all around my body.
I can honestly say, I’m in a shitload of pain. I’m not a wuss either but this is chronic, unrelenting pain now. My joints and about 6″ above and below them feel like they are burning. Deep within my muscle there is a searing pain combined with joints that pop, click and from time to time, blow up looking red. I take photos each time that happens and when I showed the Chief of Rheumatology, he said, “I don’t know what that is. We’ll ignore it for now.”
Unfortuntely, I don’t get the option of ignoring it.
I saw the MS doctor and she said I don’t have MS. I’m pretty certain this is an auto-immune disease so it’s pretty much on me to manage my case. Which means, I’m changing hospitals. There’s really only three great hospitals in Los Angeles, so I’m hoping this switch will finally land me in the offices of doctors who want to really listen and dig at my case.
As a runner and athlete my whole life, I never thought I would say this. But…medical marijuana is starting to look very appealing at 2 AM and your arms and legs are on fire. I’m not into smoking pot whatsoever but this pain is breaking me.